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I hadn't changed my eating habits and was still swimming and playing water polo, so we knew something was wrong.
After dozens of blood tests and doctor appointments, I was diagnosed with Complete Androgen Insensitivity Syndrome.
Since I don't produce natural estrogen, I take daily hormones to maintain healthy bones, sexual health, and emotional health.
So I play the role of male, knowing that I am biologically neither male nor female. After more physical exams and lab work, he charted Swyer Syndrome as the official diagnosis. Because my mom didn't start her period until she was 17, and because I was very active in school sports, they always told us that I was just a late bloomer, and not to worry about it.
Toward the end of my Junior year of high school and into the summer I grew much taller really quickly, and gained a lot of weight.
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It's very similar to Swyer Syndrome, but people with CAIS don't have a uterus.
I always wondered why I did, and (thank you google) discovered Swyer Syndrome around 2008?
So my body stuck along the default path of looking fully female on the outside, but having no functional female reproductive parts on the inside.
Woman B: I have a congenital Disorder/Difference of Sex Development (DSD) called pure gonadal dysgenesi, or Swyer Syndrome.
Before the final operation (castration) was due at age 16, I backed out, and was allowed to go back to a male role. I was so happy to be so unique, and I was so happy I'd have some weapon up my sleeve to prove my hated high school biology teacher wrong during her lessons on biological sex.
I felt like it was a super power, being female with a Y chromosome. I am blessed in that I received my diagnosis in a liberal household in the 21st century, and both my parents and doctors were so honest and supportive.
Man A: I have an XXY chromosome set with Partial Androgen Insensitivity Syndrome, so that's two elements of intersex in one body. (Having no ovaries meant no estrogen or sex hormones to affect anything.